The 18th lumbar puncture gone wrong and the calm husband who turned ASSHOLE I talked about possibly being a candidate for an alternative treatment called a stent. Then we could remove the shunt and leave me less prone to infection and malfunctions. However, today an invasive test concluded that I was NOT a candidate for a stent. The test Dr. Abraham performed today was a Cerebral Venogram. It was a very interesting test and yet another procedure that had to be the brain child on a 4-day drug and alcohol bender. After waiting four hours in a Jayhawk facility due to an emergency before me, it was my turn to go in "the room." This room resembled a training facility suited for NASA. Huge machines decorated the room and 20+ oversized monitors hung on the walls and the ceiling. In the middle of all the major technology was a tiny, cold table for me to lie on. Exactly how anyone would want to spend a beautiful Monday morning.
I was laid flat on the table underneath a 3 part x-ray machine. After all the technology was in place, Dr. A came into the room and began to saturate my groin with Lanacane. Don't worry, Kyle, that sounds way naughtier than it really was! After my groin was numb, Dr. A strung a very long catheter through my groin into my Venous Vein. This vein provided a pathway for the catheter to travel up my thigh, stomach, chest, neck and finally to my head where it spewed out contrast and measured the pressure in the major veins in my brain. The oversized monitors were aiding in the threading of the catheter.
Earlier Dr. A had seen some stenosis in two major vessels leading to my brain on a scan called an MRV. This alarmed him enough to proceed with the Venogram. However, his MRV findings raised my hopes for getting a stent and saying adios to the trouble making shunt.
Once the catheter hit the blood vessel in the right side of my head, pain radiated throughout my brain. As I mentioned this to a nurse she started pumping Fentanyl, a pain killer, through my IV. Also I could hear the catheter releasing the contrast...very eerie.
Next he had to take pictures. He had me close my eyes and mouth and breath in through my nose to take a picture of the vessel. Then the catheter was able to measure the pressure in my veins to see if the narrowing was causing increased pressure in my brain. After the right side he had to do the whole thing again on the left side. The left side was even more painful due to my naturally curvy veins. More Fentanyl was pumped into my IV though it was not helping the headache. Once contrast was released, measurements taken, and pictures obtained on the left side, Dr.A pulled that long catheter out of my groin and applied pressure to the puncture site for ten minutes.
In recovery I continue to battle a raging headache. After two more rounds of ineffective Fentanyl they decided to give me Oxycodone which helped my 8 out of 10 headache subside to a 4 out of 10. That is when Dr. A came into recovery to deliver the bad news that I was not a candidate for a stent. After he delivered the news, I was rushed off to a STAT C-SCAN because my blood pressure had dropped, one of my hands was freezing and the other was warm, and my smile was lopsided. Fear of a stroke, they got me to the CAT-SCAN room within 10 mins and the scan was read within 2mins. It was a clean scan and everyone could breath again.
On the way home, Kyle asked me how I felt about not being able to get the stent. All I could say was I 75% disappointed and 25% relieved. Relief from not having to endure any other brain surgeries and relief from knowing that the shunt IS the best treatment for me. I am glad I consulted with Dr. A and had the Venogram because it gave me peace with having a shunt
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A CLUSTER OF CRAP! Humorous mishaps in the world of Idiopathic Intercranial Hypertension, VP Shunts, and Panic Disorders. This story has a divalicious nurse named Ebony, a unruly patch of hair named Walter, and a cute EMT named Diego as characters in my ridiculous story. My hope is to make you giggle through stories that otherwise would be crappy. No pity, just eye rolls and laughs please.
Monday, July 28, 2014
Cerebral Venogram: No stent for me.
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Hey,
ReplyDeleteI have this procedure tomorrow... How long was your recovery? I'm bricking it, because it took me 2 1/2 weeks to get over a LP procedure!
Thank you,
Naomi